M. A. Goossensen

2023

Caring for children with profound intellectual and multiple disabilities: images and metaphors expressed by Dutch parents

Geuze, L. & Goossensen, A., 3 Jan 2023, (E-pub ahead of print) In: Disability and Society. 19 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

"Continuously struggling for balance": The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities

Geuze, L., Goossensen, A. & Schrevel, S., 3 Apr 2023, In: Journal of Intellectual and Developmental Disability. 48, 2, p. 161-171 11 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Grief after Pandemic Loss: Factors Affecting Grief Experiences (the CO-LIVE Study) (#236876363)

Becqué, Y., Witkamp, E., Goossensen, A., Korfage, I., van Lent, L., Pasman, H., Onwuteaka-Philipsen, B., Zee, M. & van der Heide, A., 3 Jul 2023, In: Journal of Loss and Trauma. 29, 1, p. 27-43 17 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Impact of COVID-19 on care at the end of life during the first months of the pandemic from the perspective of healthcare professionals from different settings: a qualitative interview study (the CO-LIVE study)

Zee, M., Bagchus, L., Becque, Y., Witkamp, E., van der Heide, A., van Lent, L., Goossensen, A., Korfage, I., Onwuteaka-Philipsen, B. & Pasman, H., Mar 2023, In: BMJ Open. 13, 3, 9 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

"It is important that we also remain a person ourselves": A qualitative study about the role of healthcare and social welfare services by Dutch parents caring for a child with profound intellectual and multiple disabilities at home

Geuze, L., Schrevel, S. & Goossensen, A., Dec 2023, In: SSM - Qualitative Research in Health. 4, 8 p., 100326.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Relatives' grief at three moments after death of a loved one during COVID-19 pandemic (the CO-LIVE study)

Baalen, C., Witkamp, F., Korfage, I., Pasman, H., Becqué, Y., Zee, M., van der Heide, A., Onwuteaka-hilipsen, B. & Goossensen, A., 25 Dec 2023, (E-pub ahead of print) In: Death Studies. 10 p.

Research output: Contribution to journal › Article › Academic › peer-review

Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic: A multi-national EAPC volunteer taskforce survey

Walshe, C., Pawlowski, L., Shedel, S., Vanderstichelen, S., Bloomer, M., Goossensen, A., Limonero, J., Stoelen, K., Caraffa, C., Pelttari, L. & Scott, R., Feb 2023, In: Palliative Medicine. 37, 2, p. 203-214 12 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

2022

Conceptual description and philosophical underpinning of the social intervention ‘AlzheimerWhispering’.

Otten, M. & Goossensen, M., 30 Jun 2022, In: Journal of Social Intervention : Theory and Practice. 31, 2, p. 23-39

Research output: Contribution to journal › Article › Academic

Open Access

Dying in times of COVID-19: Experiences in different care settings: An online questionnaire study among bereaved relatives (the CO-LIVE study).

Yildiz, B., Korfage, I., Witkamp, E., Goossensen, M. A., Van Lent, L., Pasman, R., Onwuteaka-Philipsen, B., Zee, M. & Van der Heide, A., 22 Apr 2022, In: Palliative Medicine. 36, 4, p. 751-761 11 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Interventions fostering interdisciplinary and inter-organizational collaboration in health and social care; an integrative literature review

Simons, M., Goossensen, M. & Nies, H., 22 Sept 2022, In: Journal of Interprofessional Education and Practice. 28

Research output: Contribution to journal › Article › Academic

Open Access

Live well, die well - an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study: the research protocol of the iLIVE study

Yildiz, B., Allan, S., Bakan, M., Barnestein-Fonseca, P., Berger, M., Boughey, M., Christen, A., De Simone, G., Egloff, M., Ellershaw, J., Elsten, E., Eychmüller, S., Fischer, C., Fürst, C., Geijteman, E., Goldraij, G., Goossensen, A., Halfdanardottir, S., Haugen, D. & Hedman, C. & 30 others, Hoppe, T., Hughes, R., Iversen, G., Joshi, M., Kodba-Ceh, H., Korfage, I., Lunder, U., Lüthi, N., Martín-Roselló, M., Mason, S., McGlinchey, T., Montilla, S., Rasmussen, B., Ruiz-Torreras, I., Schelin, M., Sigurdardottir, K., Sigurdardottir, V., Simon, J., Smeding, R., Solvåg, K., Strupp, J., Tripodoro, V., Van der Kuy, H., Van der Rijt, C., Van Zuylen, L., Veloso, V., Vibora-Martin, E., Voltz, R., Zambrano, S. & Van der Heide, A., Aug 2022, In: BMJ Open. 12, 8, 9 p., e057229.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

The struggle for goodcare. Moral challenges during the COVID-19 lockdown of Dutch elderly care facilities.

Geugten, V. D. W., Jacobs, G. & Goossensen, M. A., Feb 2022, In: International Journal of Care and Caring. 6, 1, p. 157-177 21 p.

Research output: Contribution to journal › Article › Academic › peer-review

2021

Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic: A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study)

Becqué, Y., van der Geugten, W., van der Heide, A., Korfage, I., Pasman, H., Onwuteaka-Philipsen, B., Zee, M., Witkamp, E. & Goossensen, A., 9 Oct 2021, In: Scandinavian Journal of Caring Sciences. 36, 3, p. 769-781 13 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Dying in times of the coronavirus. An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19

Onwuteaka-Philipsen, B. D., Pasman, R., Korfage, I., Witkamp, E., Zee, M., Van Lent, L., Goossensen, M. A. & Van der Heide, A., 7 Apr 2021, In: Palliative Medicine. May;35(5), 830-842, doi: 10.1177/02692163211003778.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities. A Thematic Analysis of Their Blogs

Geuze, L. & Goossensen, M. A., 30 Jun 2021, In: Global Qualitative Nursing Research.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study

McGlinchey, T., Mason, S. R., Smeding, R., Goossensen, M. A., Ruiz-Torreras, I., Faksvåg Haugen, D., Bakan, M. & Ellershaw, J. E., 20 Oct 2021, In: Palliative Medicine. 36, 4, p. 652-670 19 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Normative tensions in filial caring for a mother with dementia: A narrative perspective

Luichies, I., Goossensen, M. A. & Meide, V. D. H., 29 Apr 2021, In: Dementia. Nov;20(8), 2766-2778

Research output: Contribution to journal › Article › Academic › peer-review

2020

Dignifying and undignifying aspects of care for people with dementia: a narrative review.

Geugten, V. D. W. & Goossensen, M. A., 1 Jan 2020, In: Scandinavian Journal of Caring Sciences. 34, p. 818-838 21 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering.

Scott, R., Goossensen, M. A., Pelltari, L. & Payne, S., 6 Mar 2020, In: Scandinavian Journal of Caring Sciences.

Research output: Contribution to journal › Article › Academic › peer-review

2019

Caregiving for ageing parents: a literature review on the experience of adult children

Luichies, I. & Goossensen, M. A., 1 Jan 2019, In: Nursing Ethics.

Research output: Contribution to journal › Article › Academic › peer-review

Understanding the Value of Volunteers in Hospice and Palliative Care: Language Matters

Goossensen, M. A., 21 Jun 2019, In: Palliative Medicine & Care International Journal. 2, 4

Research output: Contribution to journal › Article › Academic › peer-review

2018

A Captive, a Wreck, a Piece of Dirt: Aging Anxieties Embodied in Older People With a Death Wish.

van Wijngaarden, E. J., Leget, C. J. W., Goossensen, M. A., Pool, R. & The, B. A. M., 21 Sept 2018, In: Omega-Journal of Death and Dying.

Research output: Contribution to journal › Article › Academic › peer-review

Emerging ritual practices in pluralistic society: A comparison of six non-religious European celebrant training programmes

Wojtkowiak, J., Knibbe, R. & Goossensen, M. A., 1 Jan 2018, In: Journal for the Study of Spirituality. 8, p. 77-90 14 p.

Research output: Contribution to journal › Article › Academic › peer-review

2017

Ethical uneasiness and the need for open-ended reflexivity: The case of research into older people with a wish to die

van Wijngaarden, E. J., Leget, C. J. W. & Goossensen, M. A., 8 Nov 2017, In: International journal of social research methodology. p. 1-15 15 p.

Research output: Contribution to journal › Article › Academic › peer-review

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Het werk van vrijwilligers in de palliatieve zorg.

Spekkink, A. & Goossensen, M. A., 1 Jan 2017, In: Pallium. 2017

Research output: Contribution to journal › Article › Professional

The social-political challenges behind the wish to die in older people who consider their lives to be completed and no longer worth living

van Wijngaarden, E. J., Leget, C. J. W. & Goossensen, M. A., 22 Dec 2017, In: Journal of European Social Policy.

Research output: Contribution to journal › Article › Academic › peer-review

File

86 Downloads (Pure)

2016

Asklepische dimensie in de zorg.

Goossensen, M. A., 1 Jan 2016, In: Pallium. 2016, p. 20-21 2 p.

Research output: Contribution to journal › Article › Professional

Caught between intending and doing: older people ideating on a self-chosen death

Wijngaarden, V. E., Leget, C. J. W. & Goossensen, M. A., 1 Jan 2016, In: BMJ Open. 6

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Defining volunteering in hospice and palliative care in Europe: an EAPC White Paper.

Goossensen, M. A., Somsen, J., Scott, R. & Pelltari, L., 1 Jan 2016, In: European Journal of Palliative Care. 4, p. 184-191 8 p.

Research output: Contribution to journal › Article › Professional

Disconnectedness from the here-and-now: a phenomenological perspective as a counteract on the medicalisation of death wishes in elderly people

Wijngaarden, V. E., Leget, C. J. W. & Goossensen, M. A., 1 Feb 2016, In: Medicine, Health Care and Philosophy. 9 p.

Research output: Contribution to journal › Article › Academic › peer-review

Evaluating care from a care ethical perspective: a pilot study.

Goossensen, M. A. & Kuis, E., 28 Jan 2016, In: Nursing Ethics. p. 1-14 14 p.

Research output: Contribution to journal › Article › Academic › peer-review

2015

Healthcare professionals under pressure in involuntary admission processes.

Hooff, V. D. S., Leget, C. J. W. & Goossensen, M. A., 1 Jan 2015, In: Nursing Philosophy. 16, 4, p. 177-186 10 p.

Research output: Contribution to journal › Article › Academic › peer-review

Ready to give up on life: the lived experience of elderly people who feel life is accomplished and no longer worth living.

Wijngaarden, V. E., Leget, C. J. W. & Goossensen, M. A., 1 Jan 2015, In: Social Science & Medicine. 138, p. 257-264 8 p.

Research output: Contribution to journal › Article › Academic › peer-review

Till death do us part: the lived experience of an elderly couple who chose to end their lives by spousal self- euthanasia.

Wijngaarden, V. E., Leget, C. J. W. & Goossensen, M. A., 16 Jul 2015, In: The Gerontologist. p. 1-11 11 p.

Research output: Contribution to journal › Article › Academic › peer-review

2014

Ethical considerations of the value of patient knowledge in nursing home care. A qualitative study of patients suffering from Korsakoff's syndrome

Hooff, V. D. S. & Goossensen, M. A., 1 Jan 2014, In: Nursing Ethics. june 2014

Research output: Contribution to journal › Article › Academic › peer-review

Experiences of family carers during the imposition of care on relatives suffering from Korsakoff's syndrome; a qualitative study.

Hooff, V. D. S. & Goossensen, M. A., 11 Jul 2014, In: Ethics and Social Welfare.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

Self-report questionnaire for measuring presence: Development and initial validation.

Kuis, E., Goossensen, M. A., van Dijke, J. L. C. & Baart, A. J., 24 Feb 2014, In: Scandinavian Journal of Caring Sciences. 2014

Research output: Contribution to journal › Article › Academic › peer-review

Toekomstspijt, dat is wat ik voel, een fenomenologische analyse van de laatste levensfase.

Koopmans, L., Oort-Borsboom, V. P. & Goossensen, M. A., 1 Jan 2014, In: Waardenwerk. 2014, 58/59, p. 96-102 7 p.

Research output: Contribution to journal › Article › Professional

M. A. Goossensen

Research output

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