Projects per year
Personal profile
Personal profile
Carlo Leget (1964) is full professor of care ethics at the University of Humanistic Studies in Utrecht, the Netherlands since 2012. As chair of the care ethics department, he is responsible for the Master in Care Ethics & Policy at his university, and his research focuses on the intersection of care, meaning and end of life issues. He is a member of the Health Council of the Netherlands, was vice-president of the European Association for Palliative Care from 2012-2019, co-founder of the EAPC reference group spirituality.
Leget has a background in theology, medical ethics and care ethics. He is currently director of research at the University of Humanistic Studies.
Carlo Leget developed a model for existential care at the end of life in a secularized society, based on the medieval art of dying tradition: the diamond model. He wrote three books and a number of scientific papers and chapter about the model, some of which have been translated into German, Spanish and Portuguese. The Diamond model is widely used in end-of-life care in The Netherlands and Belgium, it has been integrated in a medical model for monitoring palliative patients and will be validated and tested in 7 European countries from January 2024 in the EU-project Raphael on care for palliative patients with heart failure.
Carlo Leget has a long history of interdisciplinary collaboration and research at the crossroads of ethics, philosophy, medical science, nursing science, anthropology, psychology and theology. His current research centers around the development of care ethics combined with empirical research about the vulnerability of people in different stages of life, loss and grief, fundamental questions about moral epistemology, and phenomenology.
External positions
Committee member Science, 's Heeren Loo
Director, Center for Grief and Existential Values
Advisory board member 'Nu Niet Zwanger', GGD GHOR Nederland
Keywords
- care ethics
- palliative care
- loss
- grief
- existential values
- meaning in life
- medical ethics
- spirituality
Research themes
- Life course, loss and grief
- Health and welfare
- Humanist chaplaincy and meaning making
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Collaborations and top research areas from the last five years
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Buitengewoon kennismaken: collaboratief onderzoek naar zeven beleidsinitiatieven in complexe zorg
Bos, G. F. (Principal Investigator), Verhagen, F. W. (Researcher), Roelofsen, E. (Co-supervisor) & Leget, C. (Co-supervisor)
ZonMw - Langdurige zorg en ondersteuning
1/02/25 → 31/01/29
Project: Research
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Integrating a PalliativeCare Approach for patients with heart failure
Leget, C. (Principal Investigator) & van Schaik, T. (Researcher)
1/01/24 → 31/12/28
Project: Research
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Zorgvuldigheid in omgang met leeftijdsgrenzen in de Wdkb
van Nistelrooij, A. A. M. (Principal Investigator) & Leget, C. (Researcher)
ZonMW - Ethiek en gezondheid 3
1/10/21 → 30/09/22
Project: Research
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Kwetsbaarheid én kracht in gezinnen met een zorgintensief kind. Zoeken naar goede balans in complexe alledaagse gezinslevens door samenwerking vanuit zorg, (proto)professionaliteit en (ongevraagde) vriendschap
Leget, C. (Researcher), Bos, G. F. (Principal Investigator) & Niemeijer, A. R. (Researcher)
ZonMW - Langdurige Zorg en Ondersteuning
15/02/21 → 14/02/24
Project: Research
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Een(zorg)ethische analyse van de COVID-19 beleidskeuzes
de Ruiter, A. (Principal Investigator), Leget, C. (Researcher), Niemeijer, A. R. (Researcher) & Dronkers, P. (Principal Investigator)
ZonMW - COVID-19 Programma Bottom-up ronde
15/09/20 → 14/09/22
Project: Research
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Arts-Based Communities Fostering Social Justice of Persons With Intellectual Disabilities : A Qualitative Interpretive Synthesis Scoping Review of Design Elements, Approaches, and Artistic Expressions
Zimmermann, A., Hermsen, M., Visse, M. A. & Leget, C., 14 Nov 2025, In: Canadian Journal of Art Therapy. p. 1–26Research output: Contribution to journal › Article › Academic › peer-review
Open Access -
Ethical and cultural sensitivity in the palliative phase of heart failure: A scoping review
van Schaik, T., Leget, C., Witte, K., Jaarsma, P., Čelutkienė, J., Stefanicka-Wojtas, D., Marelli, D., Grant, M., Teunissen, S. & de Graaf, E., May 2025.Research output: Contribution to conference › Abstract › Academic
Open Access -
Navigating life when a loved one's (euthanasia) death is near: A narrative interview study from the Netherlands
Roest, B., Milota, M. & Leget, C., 1 Aug 2025, In: PLoS ONE. 20, 8, p. e0327917Research output: Contribution to journal › Article › Academic › peer-review
Open Access -
Seeking consensus on dilemmas related to euthanasia in dementia based on an advance directive: a Delphi study from a medical, ethical and legal perspective
DALT project group, 20 Aug 2025, In: Journal of Medical Ethics. 51, 9, p. 593-602 10 p.Research output: Contribution to journal › Article › Academic › peer-review
Open Access -
The Bloomsbury Handbook of Care Ethics
van der Weele, S., Leget, C., Niemeijer, A. R., Bos, G. F., Visse, M. A., van Nistelrooij, I. & van der Waal, R. A. B., 21 Aug 2025, Bloomsbury. 448 p.Research output: Book/Report › Book editing › Academic
Datasets
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Een (zorg) ethische analyse van de COVID-19 beleidskeuzes
De Ruiter, A. (Creator), Dronkers, P. (Contributor) & Leget, C. J. W. (Contributor), DANS Data Station Social Sciences and Humanities, 28 Nov 2022
DOI: 10.17026/dans-xy4-cqff, https://ssh.datastations.nl/citation?persistentId=doi:10.17026/dans-xy4-cqff
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The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review
Engel, M. (Creator), Brouwer, M. A. (Creator), Jansen, N. (Creator), Leget, C. (Creator), Teunissen, S. C. (Creator) & Kars, M. C. (Creator), figshare, 18 Jul 2023
DOI: 10.25384/sage.c.6747617, https://sage.figshare.com/collections/The_spiritual_dimension_of_parenting_a_child_with_a_life-limiting_or_life-threatening_condition_A_mixed-methods_systematic_review/6747617
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