TY - JOUR
T1 - Getting To(wards) Know(ing) Together
T2 - An Innovative Collaborative Approach in Residential Care for People with (Severe) Intellectual Disabilities and Behaviour That Challenges
AU - Bos, Gustaaf F.
AU - Olivier-Pijpers, Vanessa C.
AU - Niemeijer, Alistair R.
PY - 2025/8/30
Y1 - 2025/8/30
N2 - People with moderate to severe intellectual disabilities (M/S ID) and behaviour that challenges are still almost exclusively encountered and understood within a highly specialized professional care system context. They are almost invisible in the societal mainstream, where a wider variety of perspectives on (everyday) manners, encounters, relationships and life applies. These (and other) exclusionary dynamics render everyday relations with residents with M/S ID whose behaviours challenge still largely dependent on the interpretative frameworks and actions of professionals. Professionals are trained and socialized within highly specialized professional care system contexts, despite a growing scientific and professional awareness that behaviour that challenges is a multifaceted and contextual phenomenon. In this paper, we report on a pioneering initiative (titled Project WAVE) which aimed to cultivate a fresh and comprehensive approach to behaviours that challenge within stagnant care practices. Our goal was to foster an innovative collaborative paradigm by facilitating an extensive and enduring exchange between "insiders"-professionals of specialized care system contexts-and "outsider-researchers"-individuals socialized through alternative avenues. We present our epistemological and methodological approach, the data collection process (a multiple case-informed community of practice), and the most important lessons learned.
AB - People with moderate to severe intellectual disabilities (M/S ID) and behaviour that challenges are still almost exclusively encountered and understood within a highly specialized professional care system context. They are almost invisible in the societal mainstream, where a wider variety of perspectives on (everyday) manners, encounters, relationships and life applies. These (and other) exclusionary dynamics render everyday relations with residents with M/S ID whose behaviours challenge still largely dependent on the interpretative frameworks and actions of professionals. Professionals are trained and socialized within highly specialized professional care system contexts, despite a growing scientific and professional awareness that behaviour that challenges is a multifaceted and contextual phenomenon. In this paper, we report on a pioneering initiative (titled Project WAVE) which aimed to cultivate a fresh and comprehensive approach to behaviours that challenge within stagnant care practices. Our goal was to foster an innovative collaborative paradigm by facilitating an extensive and enduring exchange between "insiders"-professionals of specialized care system contexts-and "outsider-researchers"-individuals socialized through alternative avenues. We present our epistemological and methodological approach, the data collection process (a multiple case-informed community of practice), and the most important lessons learned.
KW - intellectual disabilities
KW - challenging behaviour
KW - highly specialized residential care
KW - socialisation
KW - insider-outsider
KW - stagnant care practices
KW - complexity
KW - collaborative research
KW - community of practice
KW - challenging behaviour
KW - collaborative research
KW - community of practice
KW - complexity
KW - highly specialized residential care
KW - insider-outsider
KW - intellectual disabilities
KW - socialisation
KW - stagnant care practices
UR - https://doi.org/10.3390/ijerph22091368
UR - http://www.ncbi.nlm.nih.gov/pubmed/41007513
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=PMC12469599
UR - https://www.mendeley.com/catalogue/5be1b6cd-5f50-3889-b7aa-c30b610e7c56/
U2 - 10.3390/ijerph22091368
DO - 10.3390/ijerph22091368
M3 - Article
SN - 1661-7827
VL - 22
JO - International Journal of Environmental Research and Public Health
JF - International Journal of Environmental Research and Public Health
IS - 9
ER -