Abstract
People with moderate to severe intellectual disabilities (M/S ID) and behaviour that challenges are still almost exclusively encountered and understood within a highly specialized professional care system context. They are almost invisible in the societal mainstream, where a wider variety of perspectives on (everyday) manners, encounters, relationships and life applies. These (and other) exclusionary dynamics render everyday relations with residents with M/S ID whose behaviours challenge still largely dependent on the interpretative frameworks and actions of professionals. Professionals are trained and socialized within highly specialized professional care system contexts, despite a growing scientific and professional awareness that behaviour that challenges is a multifaceted and contextual phenomenon. In this paper, we report on a pioneering initiative (titled Project WAVE) which aimed to cultivate a fresh and comprehensive approach to behaviours that challenge within stagnant care practices. Our goal was to foster an innovative collaborative paradigm by facilitating an extensive and enduring exchange between "insiders"-professionals of specialized care system contexts-and "outsider-researchers"-individuals socialized through alternative avenues. We present our epistemological and methodological approach, the data collection process (a multiple case-informed community of practice), and the most important lessons learned.
| Original language | English |
|---|---|
| Journal | International Journal of Environmental Research and Public Health |
| Volume | 22 |
| Issue number | 9 |
| DOIs | |
| Publication status | Published - 30 Aug 2025 |
UN SDGs
This output contributes to the following UN Sustainable Development Goals (SDGs)
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SDG 3 Good Health and Well-being
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SDG 10 Reduced Inequalities
Keywords
- challenging behaviour
- collaborative research
- community of practice
- complexity
- highly specialized residential care
- insider-outsider
- intellectual disabilities
- socialisation
- stagnant care practices
Themes from the UHS research agenda
- Care, welfare and flourishing
- Justice, diversity and inclusion
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