Nothing about us, without us: A case study of a consumer-run organization by and for people on the autism spectrum in the Netherlands

Karin E. Van Den Bosch, Anna Krzeminska, Eun Young Song, Lineke B.E. Van Hal, Mitzi M. Waltz, Hannah Ebben, Alice P. Schippers

Research output: Contribution to journalArticleAcademicpeer-review


In this exploratory case study based on qualitative research, we explore the perspectives and experiences of autistic self-advocates in the Netherlands regarding autism, (self-)advocacy, and consumer-run organizations. The focus of our study is a consumer-run organization by and for adult Persons on the Autism Spectrum in the Netherlands: PAS-Nederland or PAS for short. Our analysis reveals four themes relevant to the acceptance and integration of adults with autism into society and work: (1) invisibility of autistic adults; (2) diversity of the autism spectrum; (3) autistic leadership; and (4) collaboration between people with and without autism. We discuss the practical implications of our findings for the inclusion of people with autism in work and society. Our study underscores the importance of putting autistic people at the center of decision-making processes and solutions aimed at improving their outcomes in society, in general, and in the workplace specifically.
Original languageEnglish
Pages (from-to)464-480
Number of pages17
JournalJournal of Management and Organization
Issue number4
Publication statusPublished - 1 Jul 2019


  • autism
  • autism spectrum disorder
  • consumer-run organization
  • experiential knowledge
  • self-advocacy

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