Persons With a Migration Background Caring for a Family Member with Dementia: Challenges to Shared Care

M. Ahmad, J. Van den Broeke, S. Saharso, E. Tonkens

Research output: Contribution to journalArticleAcademicpeer-review


Background and Objectives:
By shedding light on the reasons why persons with a migration background (PwM) may takeup the role of family caregiver of a person with dementia, and how this relates to gender norms, we aim to elucidate culturaland social dynamics that impede care sharing.

Research Design and Methods:
A qualitative study of 12 PwM who provide care, or have recently provided care, for afamily member with dementia was conducted through semi-structured interviews. Identified themes and patterns wereanalyzed with the help of Hochschild’s interpretive framework of framing and feeling rules.

Our findings illuminate how motivations to provide care are framed through two moral framing rules, reciprocallove and filial responsibility, and how these framing rules are accompanied by the feeling rule of moral superiority overnon-caregiving family members. We show how shared dementia care is impeded though these moral framing and feelingrules, and how gender norms impact on an unequal distribution of care-tasks.

Healthcare practitioners should identify the moral dialectics of caregiving. This means that, on the one hand,they should be aware that moral framing rules may pressure women into exclusive caregiving, and that this can leadto health problems in the long term. On the other, healthcare practitioners should recognize that providing care cancreate a deep sense of pride and moral superiority. Therefore, showing acknowledgement of the caregiver contribution is acrucial step in creating trust between the caregiver and healthcare practitioner. Furthermore, asking for support should benormalized. Governmental advertisements on care–support can achieve this.
Original languageAmerican English
Number of pages10
JournalThe Gerontologist
Issue number2
Publication statusPublished - 30 Nov 2019

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