M. A. Goossensen

Onderzoeksoutput

Onderzoeksoutput per jaar 2012 2012 2014 2016 2018 2023

• 57 Article
• 12 Book
• 4 Chapter
• 3 Report
• 6 Meer
  • 3 Conference article
  • 2 Inaugural speech
  • 1 Poster

Onderzoeksoutput per jaar

Onderzoeksoutput per jaar

Zoekresultaten

• 2023

  Caring for children with profound intellectual and multiple disabilities: images and metaphors expressed by Dutch parents

  Geuze, L. & Goossensen, A., 3 jan. 2023, (E-pub ahead of print) In: Disability and Society. 19 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

• "Continuously struggling for balance": The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities

  Geuze, L., Goossensen, A. & Schrevel, S., 3 apr. 2023, In: Journal of Intellectual and Developmental Disability. 48, 2, blz. 161-171 11 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

• Grief after Pandemic Loss: Factors Affecting Grief Experiences (the CO-LIVE Study) (#236876363)

  Becqué, Y., Witkamp, E., Goossensen, A., Korfage, I., van Lent, L., Pasman, H., Onwuteaka-Philipsen, B., Zee, M. & van der Heide, A., 3 jul. 2023, In: Journal of Loss and Trauma. 29, 1, blz. 27-43 17 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  • Grief 100%
  • Loss Factor 100%
  • Grief Experiences 100%
  • Despair 60%
  • Hopelessness 50%

• Impact of COVID-19 on care at the end of life during the first months of the pandemic from the perspective of healthcare professionals from different settings: a qualitative interview study (the CO-LIVE study)

  Zee, M., Bagchus, L., Becque, Y., Witkamp, E., van der Heide, A., van Lent, L., Goossensen, A., Korfage, I., Onwuteaka-Philipsen, B. & Pasman, H., mrt. 2023, In: BMJ Open. 13, 3, 9 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

• "It is important that we also remain a person ourselves": A qualitative study about the role of healthcare and social welfare services by Dutch parents caring for a child with profound intellectual and multiple disabilities at home

  Geuze, L., Schrevel, S. & Goossensen, A., dec. 2023, In: SSM - Qualitative Research in Health. 4, 8 blz., 100326.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

• Relatives' grief at three moments after death of a loved one during COVID-19 pandemic (the CO-LIVE study)

  Baalen, C., Witkamp, F., Korfage, I., Pasman, H., Becqué, Y., Zee, M., van der Heide, A., Onwuteaka-hilipsen, B. & Goossensen, A., 25 dec. 2023, (E-pub ahead of print) In: Death Studies. 10 blz.

  Onderzoeksoutput: Article › Academic › peer review

• Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic: A multi-national EAPC volunteer taskforce survey

  Walshe, C., Pawlowski, L., Shedel, S., Vanderstichelen, S., Bloomer, M., Goossensen, A., Limonero, J., Stoelen, K., Caraffa, C., Pelttari, L. & Scott, R., feb. 2023, In: Palliative Medicine. 37, 2, blz. 203-214 12 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access
• 2022

  Conceptual description and philosophical underpinning of the social intervention ‘AlzheimerWhispering’.

  Otten, M. & Goossensen, M., 30 jun. 2022, In: Journal of Social Intervention : Theory and Practice. 31, 2, blz. 23-39

  Onderzoeksoutput: Article › Academic

  Open Access

• Dying in times of COVID-19: Experiences in different care settings: An online questionnaire study among bereaved relatives (the CO-LIVE study).

  Yildiz, B., Korfage, I., Witkamp, E., Goossensen, M. A., Van Lent, L., Pasman, R., Onwuteaka-Philipsen, B., Zee, M. & Van der Heide, A., 22 apr. 2022, In: Palliative Medicine. 36, 4, blz. 751-761 11 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  • Healthcare Settings 100%
  • Nursing Homes 100%
  • Bereaved Relatives 100%
  • COVID-19 Experience 100%
  • Online Questionnaire 100%

• Interventions fostering interdisciplinary and inter-organizational collaboration in health and social care; an integrative literature review

  Simons, M., Goossensen, M. & Nies, H., 22 sep. 2022, In: Journal of Interprofessional Education and Practice. 28

  Onderzoeksoutput: Article › Academic

  Open Access

  • Inter-organizational Collaboration 100%
  • Integrative Literature Review 100%
  • Social Care 100%
  • Interorganizational 100%
  • Health and Social Care 100%

• Live well, die well - an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study: the research protocol of the iLIVE study

  Yildiz, B., Allan, S., Bakan, M., Barnestein-Fonseca, P., Berger, M., Boughey, M., Christen, A., De Simone, G., Egloff, M., Ellershaw, J., Elsten, E., Eychmüller, S., Fischer, C., Fürst, C., Geijteman, E., Goldraij, G., Goossensen, A., Halfdanardottir, S., Haugen, D. & Hedman, C. & 30 anderen, Hoppe, T., Hughes, R., Iversen, G., Joshi, M., Kodba-Ceh, H., Korfage, I., Lunder, U., Lüthi, N., Martín-Roselló, M., Mason, S., McGlinchey, T., Montilla, S., Rasmussen, B., Ruiz-Torreras, I., Schelin, M., Sigurdardottir, K., Sigurdardottir, V., Simon, J., Smeding, R., Solvåg, K., Strupp, J., Tripodoro, V., Van der Kuy, H., Van der Rijt, C., Van Zuylen, L., Veloso, V., Vibora-Martin, E., Voltz, R., Zambrano, S. & Van der Heide, A., aug. 2022, In: BMJ Open. 12, 8, 9 blz., e057229.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  • Health Care Use 100%
  • Patient's Will 100%
  • International Cohort 100%
  • Healthcare Professional 100%
  • Personalized Care 100%

• The struggle for good care: Moral challenges during the COVID-19 lockdown of Dutch elderly care facilities.

  Geugten, V. D. W., Jacobs, G. & Goossensen, M. A., feb. 2022, In: International Journal of Care and Caring. 6, 1-2, blz. 157-177 21 blz.

  Onderzoeksoutput: Article › Academic › peer review

  • Good Care 100%
  • Dutch 100%
  • Elderly Care Facilities 100%
  • Moral Challenges 100%
  • COVID-19 Lockdown 100%

• ‘Stuck in a frozen or timeless time’ rouwen als kunst en kunde.

  Goossensen, M., 21 apr. 2022, HBO Drechtsteden. 50 blz.

  Onderzoeksoutput: Inaugural speech › Professional

  Open Access

  Bestand

  • LECTOR 100%
  28 Downloads (Pure)
• 2021

  Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic: A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study)

  Becqué, Y., van der Geugten, W., van der Heide, A., Korfage, I., Pasman, H., Onwuteaka-Philipsen, B., Zee, M., Witkamp, E. & Goossensen, A., 9 okt. 2021, In: Scandinavian Journal of Caring Sciences. 36, 3, blz. 769-781 13 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  • Netherlands 100%
  • Dignity 100%
  • End-of-life Care 100%
  • COVID-19 Pandemic 100%
  • Bereaved Relatives 100%

• Dying in times of the coronavirus. An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19

  Onwuteaka-Philipsen, B. D., Pasman, R., Korfage, I., Witkamp, E., Zee, M., Van Lent, L., Goossensen, M. A. & Van der Heide, A., 7 apr. 2021, In: Palliative Medicine. May;35(5), 830-842, doi: 10.1177/02692163211003778.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

• Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities. A Thematic Analysis of Their Blogs

  Geuze, L. & Goossensen, M. A., 30 jun. 2021, In: Global Qualitative Nursing Research.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  • Dutch 100%
  • Professional Care 100%
  • Severe Intellectual Disability 100%
  • Profound multiple Disabilities 100%
  • Blogs 100%

• ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study

  McGlinchey, T., Mason, S. R., Smeding, R., Goossensen, M. A., Ruiz-Torreras, I., Faksvåg Haugen, D., Bakan, M. & Ellershaw, J. E., 20 okt. 2021, In: Palliative Medicine. 36, 4, blz. 652-670 19 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  • End of Life 100%
  • Core Curriculum 100%
  • Delphi Study 100%
  • Volunteer 100%
  • End of Life Care 100%

• Normative tensions in filial caring for a mother with dementia: A narrative perspective

  Luichies, I., Goossensen, M. A. & Meide, V. D. H., 29 apr. 2021, In: Dementia. Nov;20(8), 2766-2778

  Onderzoeksoutput: Article › Academic › peer review

  • Dutch 100%
  • Caregivers 100%
  • People with Dementia 100%
  • Caregiving 100%
  • Dementia 100%
• 2020

  Dignifying and undignifying aspects of care for people with dementia: a narrative review.

  Geugten, V. D. W. & Goossensen, M. A., 1 jan. 2020, In: Scandinavian Journal of Caring Sciences. 34, blz. 818-838 21 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

• Schmelzende Steine Rituale am Lebensende

  Veen, V. D. M., Somsen, J. & Goossensen, M. A., 1 jan. 2020, Hospiz Verlag.

  Onderzoeksoutput: Book › Popular

• What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering.

  Scott, R., Goossensen, M. A., Pelltari, L. & Payne, S., 6 mrt. 2020, In: Scandinavian Journal of Caring Sciences.

  Onderzoeksoutput: Article › Academic › peer review
• 2019

  Caregiving for ageing parents: a literature review on the experience of adult children

  Luichies, I. & Goossensen, M. A., 1 jan. 2019, In: Nursing Ethics.

  Onderzoeksoutput: Article › Academic › peer review

• Darum mache ich es’ Erfahrungen von Ehrenamtlichen in der Palliative Care.

  Goossensen, M. A. & Sakkers, M., 1 jan. 2019, Hospiz Verlag. 104 blz.

  Onderzoeksoutput: Book › Professional

• Understanding the Value of Volunteers in Hospice and Palliative Care: Language Matters

  Goossensen, M. A., 21 jun. 2019, In: Palliative Medicine & Care International Journal. 2, 4

  Onderzoeksoutput: Article › Academic › peer review
• 2018

  A Captive, a Wreck, a Piece of Dirt: Aging Anxieties Embodied in Older People With a Death Wish.

  van Wijngaarden, E. J., Leget, C. J. W., Goossensen, M. A., Pool, R. & The, B. A. M., 21 sep. 2018, In: Omega-Journal of Death and Dying.

  Onderzoeksoutput: Article › Academic › peer review

• Emerging ritual practices in pluralistic society: A comparison of six non-religious European celebrant training programmes

  Wojtkowiak, J., Knibbe, R. & Goossensen, M. A., 1 jan. 2018, In: Journal for the Study of Spirituality. 8, blz. 77-90 14 blz.

  Onderzoeksoutput: Article › Academic › peer review

• Hospice and palliative care volunteering in the Netherlands. Practices of being there.

  Goossensen, M. A., 1 jan. 2018, In: Palliative Medicine in Practice. 12, blz. 193-197 5 blz.

  Onderzoeksoutput: Article › Academic › peer review

• Ontstollend steen. Rituelen aan het levenseinde.

  Veen, V. D. M., Somsen, J. & Goossensen, M. A., 1 jan. 2018, VPTZ Nederland.

  Onderzoeksoutput: Book › Professional

• Parents caring for children with normal lifespan threatening disabilities: a narrative review of literature

  Geuze, L. & Goossensen, M. A., 21 dec. 2018, In: Scandinavian Journal of Caring Sciences. 33, blz. 279-297 19 blz.

  Onderzoeksoutput: Article › Academic › peer review

• Purely for you. Inmates'perceptions of prison visitation by volunteers in the Netherlands.

  Schuhmann, C. M., Kuis, E. & Goossensen, M. A., 20 mrt. 2018, In: International Journal of Offender Therapy and Comparative Criminology.

  Onderzoeksoutput: Article › Academic › peer review

• Volunteering in Hospice and Palliative care in the Netherlands

  Goossensen, M. A., Somsen, J., Scott, R. (Editor) & Howlett, S. (Editor), 1 jan. 2018, The Changing Face of Volunteering in Hospice and Palliative Care.. Oxford University Press, 240 blz.

  Onderzoeksoutput: Chapter › Academic

• Vrijwilligers en kwaliteit, mag je een gegeven paard in de bek kijken?

  Goossensen, M. A., 1 jan. 2018, In: Pallium. 20, blz. 14-15 2 blz.

  Onderzoeksoutput: Article › Professional
• 2017

  Ethical uneasiness and the need for open-ended reflexivity: The case of research into older people with a wish to die

  van Wijngaarden, E. J., Leget, C. J. W. & Goossensen, M. A., 8 nov. 2017, In: International journal of social research methodology. blz. 1-15 15 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Bestand
  50 Downloads (Pure)

• Het werk van vrijwilligers in de palliatieve zorg.

  Spekkink, A. & Goossensen, M. A., 1 jan. 2017, In: Pallium. 2017

  Onderzoeksoutput: Article › Professional

• Holimozus, nee! Reflecties over machteloosheid.

  Goossensen, M. A., Van Harteveld, J. & Van der Graaf, H., 1 jan. 2017, VPTZ Nederland.

  Onderzoeksoutput: Book › Professional

• The art of Being There - volunteering in contemporary Dutch palliative care practice

  Goossensen, M. A., Somsen, J., Scott, R. (Editor) & Howlett, S. (Editor), 1 jan. 2017, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective.. Oxford University Press

  Onderzoeksoutput: Conference article › Academic

• The social-political challenges behind the wish to die in older people who consider their lives to be completed and no longer worth living

  van Wijngaarden, E. J., Leget, C. J. W. & Goossensen, M. A., 22 dec. 2017, In: Journal of European Social Policy.

  Onderzoeksoutput: Article › Academic › peer review

  Bestand
  85 Downloads (Pure)
• 2016

  Asklepische dimensie in de zorg.

  Goossensen, M. A., 1 jan. 2016, In: Pallium. 2016, blz. 20-21 2 blz.

  Onderzoeksoutput: Article › Professional

• Caught between intending and doing: older people ideating on a self-chosen death

  Wijngaarden, V. E., Leget, C. J. W. & Goossensen, M. A., 1 jan. 2016, In: BMJ Open. 6

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  • Older People 100%

• Defining volunteering in hospice and palliative care in Europe: an EAPC White Paper.

  Goossensen, M. A., Somsen, J., Scott, R. & Pelltari, L., 1 jan. 2016, In: European Journal of Palliative Care. 4, blz. 184-191 8 blz.

  Onderzoeksoutput: Article › Professional

• Disconnectedness from the here-and-now: a phenomenological perspective as a counteract on the medicalisation of death wishes in elderly people

  Wijngaarden, V. E., Leget, C. J. W. & Goossensen, M. A., 1 feb. 2016, In: Medicine, Health Care and Philosophy. 9 blz.

  Onderzoeksoutput: Article › Academic › peer review

• Do Not Wash your Dirty Linen in Public? Satisfaction Data and Quality of Volunteering in Hospice and Palliative Care.

  Goossensen, M. A., Notenboom, M., Spekkink, A. & Holtkamp, C., 1 jan. 2016, -.

  Onderzoeksoutput: Conference article › Academic

• Evaluating care from a care ethical perspective: a pilot study.

  Goossensen, M. A. & Kuis, E., 28 jan. 2016, In: Nursing Ethics. blz. 1-14 14 blz.

  Onderzoeksoutput: Article › Academic › peer review

• Grasping or letting go? Reflections on 'inner space' of patiënts in palliative care.

  Goossensen, M. A., Koopmans, A. L., van Oort-Borsboom, P. & Leget, C., 1 jan. 2016.

  Onderzoeksoutput: Poster › Academic

• Improving sensitivity of volunteers in palliative care for patients’ spiritual stress.

  Goossensen, M. A., Hidding, A., Kubber, de,, S., Vorst, van der,, M. & Leget, C. J. W., 1 jan. 2016, -.

  Onderzoeksoutput: Conference article › Academic

• Naar de poëtica van de ander. De waarde van vrijwilligers in de palliatieve terminale zorg.

  Goossensen, M. A., 16 jun. 2016, Universiteit voor Humanistiek. 50 blz.

  Onderzoeksoutput: Inaugural speech › Academic

  Bestand
  42 Downloads (Pure)

• ‘Dorst of doodsangst’. Het onderkennen van (spirituele) signalen van cliënten in de terminale fase.

  Goossensen, M. A., Hidding, A., Kubber, de, S., Vorst, van der, M. & Leget, C., 1 jan. 2016, VPTZ Nederland.

  Onderzoeksoutput: Book › Professional
• 2015

  Healthcare professionals under pressure in involuntary admission processes.

  van den Hooff, S. L., Leget, C. J. W. & Goossensen, M. A., 1 jan. 2015, In: Nursing Philosophy. 16, 4, blz. 177-186 10 blz.

  Onderzoeksoutput: Article › Academic › peer review

• Inleiding: wat is de ziel in de zorg waard?

  Goossensen, M. A., Jorna, T. (Editor), Jorna, T. (Editor), Leget, C. (Editor) & Leget, C. (Editor), 1 jan. 2015, In wetenschap van de ziel. Eburon, 10 blz.

  Onderzoeksoutput: Chapter › Professional

• Puur voor jou. Onderzoek naar één-op-één bezoekgesprekken van vrijwilligers aan gedetineerden.

  Kuis, E., Schuhmann, C. M. & Goossensen, M. A., 1 jan. 2015, WODC. 112 blz.

  Onderzoeksoutput: Report › Professional

  • Exodus 100%
  • Humanitas 100%